NICU Visit #2

I'm sure all of you have heard by now that Kennedy is back in the NICU. She threw up more blood Friday morning and Saturday morning, so on Saturday we just decided that enough was enough and brought her to the ER at Lutheran. Dr. Smith then decided to admit her to get some stuff figured out. They were kind of hesitatant, but she was allowed back in the NICU. Normall if you leave the NICU, you can come back in within a week but if it's been longer than that you have to go to the PICU. It just has to do with contamination and being out in the world for a while. I was really happy that we got let back in! All the nurses and doctors already know her and what is going on. Also, we got the same room again! Pretty crazy! On Sunday they just did some bloodwork and kept an eye on her. They also took her off the Zantac and switched her to Prevacid. It does the same thing but is a lot stronger. Then on Monday they did an upper and lower endoscopy and a colon biopsy. Dr. Smith said that the endoscopies didn't show anything. So whatever was bleeding before stopped. Her esophagus is still huge, which is why she has all the reflux problems. Where is connects with the stomach is just a big opening and stuff just freely comes up. He said hopefully the prevacid will help with the reflux and she will grow out of it. If she doesn't though, there is a surgery that can fix it but he is saving that as a last ditch effort. He really doesn't want to do anymore surgeries on her! The biopsies will take a couple days to come back. I think he was checking for Hirschsprungs and a couple other things.
Kennedy was super mad when she woke up from the anethestic! (Which I guess is common) We got her calmed down for a while and then fed her. Which she liked the food, but she only got 30mL just in case it wasn't going to sit well in her stomach. And of course that made her mad. She wanted more! Her temp was cold from the procedure so we got her all dressed and bundled up so that helped with her anger. Dr. Smith also said it was OK to give her some Tylenol to help calm her down too.
She has been doing so well this time and she has had some pretty invasive stuff done to her this time!! She is such a brave girl!
Hopefully though we are going home today. Dr. Smith told me yesterday that as long as she resumed her feedings well last night she could go home. But when I called to talk to her nurse this morning, she didn't know anything about her going home today. So I guess we will see!